All Things Digital

Today, Mike Homer, as well as many others suffering from incurable degenerative brain disease and dementias, will get a new video-sharing channel on YouTube (GOOG), along with a Web site and an interactive widget.

Last year, BoomTown wrote about the struggle of Homer, the longtime Silicon Valley entrepreneur (pictured here; I met him in the mid-1990s, when he was an exec at Netscape).

Unfortunately, Homer continues to suffer from Creutzfeldt-Jakob Disease (CJD), for which he is under treatment at the University of California at San Francisco.

“The Fight for Mike” has raised $7 million for CJD at UCSF, where Dr. Stanley B. Prusiner–who was awarded the Nobel Prize in 1997 for discovering the prion protein that causes CJD–is working on a major project aimed at defeating neurodegenerative diseases.

Now comes a unique collaboration between YouTube and the UCSF Memory and Aging Center, organized by two well-known Silicon Valley entrepreneurs, Ron Conway and Bill Campbell, with the help of YouTube Co-Founder Chad Hurley.

Conway and Campbell, along with the Homer family, have led the efforts to help find a cure for Homer.

Naturally, given Homer’s background, a digital initiative was inevitable.

Thus, the new project is the kick-off of the Memory and Aging Center’s “Defeat Dementia” campaign at UCSF, which is trying to use the Web and other digital technologies to help find new ways to get information out about public health issues.

Along with CJD, the YouTube effort will also focus on Frontotemporal Dementia (FTD), Parkinson’s, ALS and Alzheimer’s and try to engage the public and the medical community in a search for the causes and cures of these debilitating neurodegenerative conditions.

On the channel: videos of clinical-researchers and physicians discussing characteristics of the diseases; personal stories of patients and family members; and videos featuring advice and coping strategies from health-care professionals.

There is also now a Defeat Dementia Facebook group on the topic, and UCSF also has a partnership with Veodia.

Here is a video I did with Conway this week about the effort:

The full video from the Fight for Mike event, held a week ago in Palo Alto, Calif., for Mike Homer, is now up on YouTube and is embedded below.

Friends and colleagues of the well-known tech veteran came together to learn about his severe illness–he was recently diagnosed with Creutzfeldt-Jakob disease.

The hour-long event included speeches by close Homer friends and tech luminaries, Bill Campbell and Ron Conway, information about CJD from doctors at the University of California at San Francisco, where Homer is being treated, and questions from the audience of hundreds.

A rare, neurodegenerative prion disease, which in Homer’s case has occurred sporadically rather than via infection (the well-known variant that occurs in animals is called mad cow disease), CJD’s incidence is one case in a million annually. Few survive beyond a year after exhibiting symptoms, and there is no known cure for CJD.

The hospital at UCSF is the only place in this country that has a major laboratory doing both research and clinical trials. And Homer, his family and friends are making a big push to accelerate the pace of discovery for treatments and a cure, by raising money for the cause and pushing for even more aggressive development.

For those who want to help, there are several ways, including via donation to the Homer Family Foundation’s Program for Brain Disease Research (P.O. Box 10195, Palo Alto, Calif. 94303); the Homer Family Fund for Brain Research at the Harris myCFO Foundation (P.O. Box 10196, Palo Alto, Calif. 94303); or the UCSF Foundation, specifically to the “Fight for Mike Fund” or generally for neurodegenerative disease research and treatment.

Here is the long video, which–even at almost 60 minutes–is well worth it:

Last night, in an extraordinary gathering in Silicon Valley, friends and colleagues of Mike Homer came together to learn about his severe illness–the longtime tech veteran was recently diagnosed with Creutzfeldt-Jakob disease.

In an event organized by Homer and his wife, Kristina, as well as close friends and well-known industry players Bill Campbell and Ron Conway, several hundred people crowded into the Palo Alto Sheraton to get a primer course about CJD from doctors at the University of California at San Francisco. (See video below.)

These doctors also happen to be the leading specialists in the world trying to find treatments and a cure for the cruel disease and include the man–Dr. Stanley Prusiner–who won the Nobel Prize in 1997 for discovering “prions,” infectious agents that are at the heart of CJD.

A rare, neurodegenerative prion disease, which in Homer’s case has occurred sporadically rather than via infection (the well-known variant that occurs in animals is called mad cow disease), CJD’s incidence is one case in a million annually, and few survive beyond a year after exhibiting symptoms.

Homer had been suffering from memory problems late last year. Another close friend, Netscape co-founder Marc Andreessen, aided Homer in getting to the right doctors at Stanford University Hospital, where he was diagnosed.

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